Disclaimer: All video and images on this webpage are the sole property of their respective owners. We have provided this information in the hopes that they will serve as a resource for the EB community |
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The Boy Whose Skin Fell Off tells the story of Johnny Kennedy and his prolonged fight with EB. His story introduced EB to thousands of people who had never heard of Epidermolysis Bullosa and brought new awareness to the issue. This is his story:
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Garrett: The Boy Beneath The Bandages is a photo documentary that shows the daily struggles that Garrett and his family has to go through while dealing with this disease. The pictures and video was captured by Andre Hermann as a thesis project. For one and a half years he documented Garrett's struggles and put together this documentary to share it with the world.
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